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Patients & Care Partners

Resources that primary care teams can provide to patients and their care partners for community, legal, and care planning support.

Screening, Assessment, or Diagnosis of Dementia

The California Alzheimer’s Disease Centers (CADCs) are a statewide network of ten dementia care Centers of Excellence at university medical schools, established by legislation in 1984. The CADCs effectively and efficiently improve dementia health care delivery, provide specialized training and education to health care professionals, and advance the diagnosis and treatment of Alzheimer’s disease and dementia.

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Location: All counties

The California Department of Public Health Assessment of Cognitive Complaints Toolkit is a comprehensive resource for detecting and addressing cognitive issues for Alzheimer’s.

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Memory Sunday promotes national mobilization and education of faith communities to take a greater role in increasing the awareness and understanding of Alzheimerโ€™s, supporting persons living with Alzheimerโ€™s, and their caregivers.

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Location: National

Information on training and tools for medical professionals, as well as local offices throughout California that offer education, care and support to individuals living with dementia and their caregivers.

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Location: All counties

Education and Training

The California Alzheimer’s Disease Centers (CADCs) are a statewide network of ten dementia care Centers of Excellence at university medical schools, established by legislation in 1984. The CADCs effectively and efficiently improve dementia health care delivery, provide specialized training and education to health care professionals, and advance the diagnosis and treatment of Alzheimer’s disease and dementia.

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Location: All counties

Eleven nonprofit California Caregiver Resource Centers (CRCs) that serve family caregivers of adults affected by chronic and debilitating health conditions, degenerative diseases, or traumatic brain injury.

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Location: All counties

The Care Ecosystem (CE) model was first designed in 2013 to help address the unmet needs of persons with dementia and their caregivers. The goals of the program include improving quality of life for persons with dementia and their caregivers, preventing unnecessary hospitalizations, and delaying admissions to long-term care institutions. The program provides caregiver support, linkages to community-based resources, advance care planning, medication support, and care coordination via a multidisciplinary team. This toolkit provides an overview of the CE model, how to prepare for and implement the CE model, and details of the CE protocols.

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Dementia Society of Americaยฎ (DSA) is the nationโ€™s leading volunteer-driven all-Dementias awareness organization. DSA provides an information hotline (1-800-DEMENTIAยฎ), many online resources, and an easy-to-use, web-based locator, which can help families and individuals find valuable support near to them.

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Location: National

This site provides information and resources for diabetes management and prevention.

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Location: All counties

Education, support and information about Lewy Body Dementia research for people living with Lewy Body Dementia and their loved ones.

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Location: National

Information on training and tools for medical professionals, as well as local offices throughout California that offer education, care and support to individuals living with dementia and their caregivers.

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Location: All counties

Family Caregiver Alliance has articles on several behaviors in several languages, including English, Spanish, Chinese, Vietnamese, Tagalog (Filipino), Korean.

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Location: All counties

Driving and Dementia

This site provides information about California State Law regarding dementia and driving.

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Location: All counties

Behavioral Symptoms of Dementia

This website gives general advice about approaching behavioral changes and also has tips for several common behavior and mood changes.

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Location: All counties

This website discusses medications for hallucinations, delusions, severe agitation and aggression.

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Location: All counties

Medications and Treatments for Dementia

This website discusses medications for hallucinations, delusions, severe agitation and aggression.

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Location: All counties

Medical / Legal Support

Webinar with local estate planning and elder law experts who provide information about getting key legal documents in place and how to plan for the costs of future care for someone living with Alzheimer’s disease or another dementia. Presented by Yvonne Amrine of Amrine Law, February 2021.

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Location: San Diego and Imperial counties

The mission of Legal Services of Northern California is to provide quality legal services to empower the poor to identify and defeat the causes and effects of poverty within our community, efficiently utilizing all available resources.

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Location: All counties

NLSLA provides free assistance to more than 150,000 individuals and families through innovative projects that expand access to justice and address the most critical needs of people living in poverty throughout Los Angeles.

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Location: Los Angeles

PREPARE is a step-by-step program with video stories to help individuals have a voice in their medical care, talk with their doctors, and fill out an advance directive form to put your wishes in writing.

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Location: All counties

The Conversation Projectยฎ is a public engagement initiative of the Institute for Healthcare Improvement (IHI). Our goal is both simple and transformative: to help everyone talk about their wishes for care through the end of life, so those wishes can be understood and respected.

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Location: National

The Medical-Legal Partnership for Seniors Clinic (MLPS) is an innovative, award-winning clinic at UC Law SF. The clinic partners with UCSF and the San Francisco VA Medical Center to provide advance health care, estate planning, public benefits, and wrap-around legal services to older adult patients.

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Location: All counties

Community Resources for Dementia

The Alzheimer’s Association leads the way to end Alzheimer’s and all other dementia โ€” by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support. To respond to each community’s needs, the Alzheimer’s Association offers training and tools for medical professionals, as well as local offices throughout California that offer education, care and support to individuals living with dementia and their caregivers.

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Location:ย National

The mission of Alzheimer’s Los Angeles is to improve the lives of families affected by Alzheimerโ€™s and dementia by increasing awareness, delivering effective programs and services, providing compassionate support, and advocating for quality care and a cure.

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Location: Los Angeles county

Since 1982, Alzheimerโ€™s Orange County has been Orange Countyโ€™s center for Alzheimerโ€™s resources. We are dedicated to providing quality care and support services to the thousands of residents of Orange County who are affected by Alzheimerโ€™s disease or other related dementia, and also partnering with local researchers to populate clinical trials to help find a cure.

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Location: Orange county

The mission of Alzheimer’s San Diego is to help people impacted by dementia, fight dementia stigma, and support dementia research.

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Location: San Diego and Imperial counties

The Alzheimerโ€™s Project is a regional initiative established by the San Diego County Board of Supervisors to address the toll of Alzheimerโ€™s and related dementias on families, communities and our healthcare systems. This 2021 toolkit includes best practices standards for primary care physicians, internists, psychiatrists, nurse practitioners, and physician assistants caring for older adults in their practices.

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Location: National

AJSOCAL is a social justice organization that protects and strengthens the rights and dignity of Asian American and Pacific Islander (AAPI) communities, especially those that are most disadvantaged.

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Location: Southern California

The California Department of Veterans Affairs (CalVet) works to serve California veterans and their families. CalVet strives to serve veterans and their families with dignity and compassion and to help them achieve their highest quality of life, and connect them with their earned benefits through education, advocacy, and direct services.

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Location: All counties

For more than 40 years, FCA has provided services to family caregivers of adults with physical and cognitive impairments, such as Parkinsonโ€™s, stroke, Alzheimerโ€™s and other types of dementia. Our services include assessment, care planning, direct care skills, wellness programs, respite services, and legal/financial consultation vouchers. Ongoing support is available with FCA CareNavโ„ข, also now on a digital service platform. FCA is a longtime advocate for caregivers in the areas of policy, health and social system development, research, and public awareness, on the state, national and international levels.

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Location: National

Los Angeles County and L.A. Found is an organization that helps caregivers of those living with Alzheimerโ€™s, dementia, autism or other cognitive impairments find their loved one when lost.

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Location: Los Angeles

Established in 1987 as a non-profit 501(c)3, Southern Caregiver Resource Center (SCRC) is the leading provider of free caregiver support services for families caring for frail older adults and adults living with Alzheimerโ€™s disease and related disorders in San Diego County.

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Location: San Diego and Imperial counties

The Family Caregiving Institute at UC Davis is dedicated to the well-being of family caregivers through education and research, and provides family caregiver consultations to caregivers of UC Davis Health patients. During these one-on-one consultations, caregivers may seek guidance, support and solutions to challenges.

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Location: Sacramento county

Find Local Dementia Care Resources

Search for local Area Agencies on Aging to find resources and support for dementia care near you.